Yesterday while doing some research for Autism United I came across a few stories that I had heard about but didn’t really take the time to read and watch. But after reading the articles and then watching the news reels I sat and cried for those parents. These families have suffered so much and lost so much and are crying out to all. I want to share some of what the Canadian CTV has posted.
The story of Amanda Telford’s heart-wrenching decision to leave her 20-year-old son, Philippe at a government office in April struck a chord with many families struggling to care for those with developmental disabilities. In addition to autism, Phillipe has Tourette’s syndrome, diabetes and functions at the level of a two-year-old.
At the time, Telford said she and her husband were absolutely exhausted and left Philippe at an office for adults with developmental disabilities out of desperation, saying that her son needed more than the couple could give him.
“We struggle with a lot of guilt over what we felt we had to do and a lot of anger over what we were compelled to do,” Telford told CTV Ottawa this week.
Now, the Telfords’ story has sparked a grassroots movement pushing for a Family Bill of Rights, which would help families with children who have developmental disabilities to face daily struggles and difficult decisions when they can no longer provide proper care for their children.
Read more about Mother who left son with autism sparks push for Family Bill of Rights: http://www.ctvnews.ca/canada/mother-who-left-son-with-autism-sparks-push-for-family-bill-of-rights-1.1444625#ixzz2g6jP7fnJ
Another Mother has unfortunately gone to the next level and this I don’t want to say really anything about, other than my heart bleeds for her life changing decision that I am sure she regrets daily.
RIVER GROVE, IL, June 13, 2013 (LifeSiteNews.com) – A 14-year-old severely autistic boy has died after his mother and caregiver decided that his “emotional condition had deteriorated” and made him unfit to live.
My husband and I sat last night and talked about both of these families and shared tears for both young men.
What terrible decisions for a parent to have to make. I am not writing to judge either of their choices but how terrible to feel you are so stuck in the corner because you have no where to turn. The Canadian Government like all governments says there is help and assistance available, but like most government funded facilities or assistance it usually is just not enough.